POTS patient now working where she was diagnosed

  • Neurosciences

When Jenna Rose started experiencing frequent fainting episodes and different uncommon signs, she put high faculty on pause and got here to Mayo Clinic looking for solutions. Nine years later, Jenna joined Mayo Clinic to assist sufferers like her get on the trail to therapeutic.  

Jan. 6, 2015, started like another day for Jenna Rose, however it ended as something however bizarre.

A high-school junior on the time, Jenna was in the midst of artwork class when she fainted out of the blue and unexpectedly. The following day, it occurred once more.

“I continued to have dizziness and syncope, and over the course of the next few weeks, I became extremely fatigued and experienced weakness, headaches, pain and nausea, which made walking, eating and sleeping unpredictable,” Jenna says. “I started using a walker and wheelchair.”

Less than two months later, she needed to drop out of high faculty.

After she fainted the second time, Jenna’s mother — a Mayo nurse — introduced her to Mayo Clinic in Arizona, where medical doctors discovered a solution for her sudden signs — postural orthostatic tachycardia syndrome, or POTS. The expertise put her on a path again to health and impressed a profession course that introduced her again to the identical neurology flooring where she was diagnosed.

A youngster with a posh situation: Jenna’s POTS analysis

At Mayo Clinic, Jenna’s major care doctor, Amy Rampley, M.D., carried out an examination and famous important adjustments in Jenna’s coronary heart price with positional adjustments. She then ran labs to verify for mononucleosis and different widespread diagnoses.

Once these have been dominated out, Jenna was referred to electrophysiologist Luis Scott, M.D., who did varied assessments to make sure Jenna’s coronary heart and lungs have been healthy. Those assessments all got here again regular.   

Next, Jenna noticed neurologist Brent Goodman, M.D., now retired, who made her analysis. Jenna had developed postural orthostatic tachycardia syndrome — POTS for brief — a situation wherein the nerves that regulate blood stream are out of steadiness, so not sufficient blood goes to the precise place on the proper time, inflicting quite a lot of signs like those Jenna skilled.

Jenna’s care plan targeted on symptom administration and concerned loads of trial and error.

Trial-and-error method yields optimistic outcomes

“By the time I received my POTS diagnosis in the spring of 2015, I had lost a concerning amount of weight and was continuing to decline,” Jenna says.

Jenna started remedy and slowly started to place her weight again on.  

In 2017, Jenna accomplished a three-week ache rehabilitation program and constructed friendships with others within the continual sickness group.  

In the years that adopted, she started biweekly subcutaneous residence infusions, which she continues in the present day. She visited Psychology, Psychiatry, Sleep Medicine, Aerospace Medicine and Pharmacogenomics.

She additionally did a three-month POTS-centered exercise examine led by Courtney Wheatley-Guy, Ph.D. It was round that point that she started making strides towards impartial mobility.

My care workforce was and is all the pieces to me. Dr. Goodman handled me with respect and compassion, all the time.

Jenna Rose

As Jenna remembers how far she has come by the years, she credit her progress to her knowledgeable care workforce, together with her medical doctors, lab technicians, therapists and nurses, and their willingness to attempt varied approaches till they discovered what labored for her.

“While recovery is a long and winding road, Mayo has helped me progress in many ways,” Jenna says.

“My care team was and is everything to me,” Jenna says. “Dr. Goodman treated me with respect and compassion, always. His transparency about both the severity of my health and the limitations of medicine was the most helpful and dignified support I ever received — even and especially when I was a teenager.”

Finishing faculty and returning to the actions she loves

A 12 months after dropping out of high faculty, Jenna returned and earned her high faculty diploma. After commencement, Jenna attended Paradise Valley Community College and Arizona State University, where she acquired a bachelor’s diploma in speech and listening to sciences.

Last 12 months, she went snowboarding for the primary time since she grew to become unwell and attended her first live performance with out a walker. She additionally started boxing and acquired again into making artwork and journal collages.  

“I am slowly building my life back up into something I am both comfortable with and excited to experience,” Jenna says.

Of all of the issues Jenna has completed since her analysis, there may be one which makes her most proud: Landing a full-time job at Mayo Clinic, on the ground where she acquired her analysis.

Jenna’s full circle second: Working where she was diagnosed

Jenna knew she wanted to land a full-time job earlier than she turned 26 to keep up health protection, so she selected to convey her abilities to Mayo Clinic in Arizona.

In 2023, Jenna landed a full-time job as a desk operations specialist on the neurology flooring.

“Working on the floor where I was diagnosed and have spent so much time is the most meaningful work I have ever done. I have gone through a lot of the testing and appointments that I am now helping to schedule for others,” Jenna says.

“My journey at Mayo did not start by choice,” she says, “but it continues very intentionally.”

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